April 18th & 19th

Both boys are doing well. It was a low-key weekend, and Dad came visit, which was really nice.

Colton had a great week. He’s been playing with his pacifier and has started using it to calm himself down, which is the cutest thing to watch when he really gets going. He’s had lots of poops, lots of little giggles, and is making more eye contact. He just seems more and more engaged every day.

Declan, on the other hand, had a bit of a tougher weekend. He had an episode Saturday night and unfortunately needed to be bagged to help bring his stats back up. He’s still fighting this infection, and we recently found out he also has a small fracture in his leg, which is just heartbreaking. We’re hoping that increasing his calcium now that he’s eating again will help strengthen and protect his fragile bones.

Because of everything going on, he’s been a little more cranky and needing some extra love…but he’s slowly getting back to eating, taking it one step at a time as we prepare for his surgery in about 10 days.

Overall, it was a calm weekend as we head into a new week. Declan should have a scan coming up to take a closer look at his lower GI and his bones, which we’re hoping will give us more answers.

Colton just needs to keep doing his thing, eating, growing, and getting bigger every day.

As we learn more this week we keep everyone updated. Many prayers are needed as we get closer to Declan’s big surgery date! 💙💙

Cranky Declan

Flirty Colton