Colton had a really great night and day. He pooped (huge win!), is peeing a ton, and his coloring looks so good. He’s slowly been weaning down from his high oxygen levels, and if he keeps trending this way, we’re hoping to hit another big milestone in the next few days. We’re so proud of him and thankful for the progress. Declan is still in a tougher spot and needs all the prayers and support right now. He’s very swollen from the medications and from having to stay on his bac

Last night both boys did great. 🙏 Both are peeing, and we’re seeing their kidneys working strong. Colton is off some of his pain meds and is being wiggly again! He started steroids for his lungs and will begin getting weaned down on some of his ventilator settings, let’s go!!! He’s been on them since day 2, so this feels like a big step forward. Declan is fighting hard and showing just how brave he is. His heart rate and blood pressure are in line with a healthy little boy.

Declan has had two procedures this week, one early Tuesday morning at 4am and another on Thursday at 2pm. His little body has been through so much in such a short time. Right now, things are very serious. We had a difficult conversation with his doctors about life-saving measures and what the coming weeks could look like. They are concerned about whether he will make it the next 3–4 weeks to be able to go back in and see what is happening inside his gut. Every hour can change