April 24

It’s been a very eventful few days for Colton and Declan.

The boys officially moved up a floor, and now they both have window rooms overlooking Oak Street beach and the lake. It truly feels like we’re moving up in the world. From a dark NICU room during the CDH days, to another dim space at Lurie’s, and now finally into brighter rooms that feel full of light and possibility, it feels like a step toward a bigger future.

For now, they’re still in separate rooms, and we’re hoping this is the last time they’ll be apart before they finally get to go home and share a room together.

Colton has been doing well. Right now, his main job is to grow. With the increase in calories and feeds, he’s been a little fussier than usual, but it’s all part of the adjustment. He’s working through it, and we’re proud of him. (Very gassy and stinky boy)

Declan has been steady…resting, staying status quo, and being the calm, sweet boy he is. His surgery is scheduled for Wednesday, the 29th. We are asking for all the prayers, good thoughts, and blessings as we head into this next step. This is a big moment for him and for all of us. After waiting 10 weeks, we are hopeful that this surgery will give us more answers and help guide what’s next for his journey. He has done everything he needs to do, he’s grown and gotten stronger, and now we’re trusting that he’s ready.

The boys have been feeling the love. So many of the staff have come to visit, see their new rooms, has celebrate this little upgrade with us. It means more than we can put into words.

We are hopeful. This move feels like progress, like a step closer to home. We know we still have a long road ahead and likely months to go, but in a season like this, even the smallest forward movement feels big.

Please keep the prayers coming as we head into next week. We’re praying Declan’s surgery goes smoothly and brings the best possible outcome. And we’re hoping Colton stays stable, continues to grow, and gives his brother the space to get through this big moment.

One step at a time. Always forward. 🫶🙏

Declan Jet

Colton Ryan