May 28th - Colton’s update
- kylielehr
- May 28
- 2 min read
Today was a really big day for our family.
Colton had his trach surgery today, and thankfully everything went smoothly. He is now recovering and doing well. There is still a long road ahead, but today felt like such a huge step forward for him.
One of the most emotional moments of the day was finally seeing his full face for the first time in 4 months. 🩵💙
Something I will never, ever take for granted again. Seeing his little cheeks, his whole face… it honestly felt surreal. A moment I’ve dreamed about for so long.
At the same time, my heart still aches waiting for the day I get to see Declan’s face too.
For now, Colton will remain paralyzed and sedated until Monday or Tuesday so his stoma, the opening in his throat for the trach, has time to heal properly. Once that heals, he will slowly be able to start moving again. Hopefully in the upcoming weeks we can start doing more baby things with him… sitting up, playtime, and seeing more of his personality shine through.
Today carried so many emotions all at once. Relief. Gratitude. Sadness. Hope. Exhaustion.
I keep connecting back to the song “Zombie” and the feeling behind it. Sometimes trauma changes you in ways you can’t fully explain. It leaves you feeling numb while also carrying so much emotion at the exact same time. That’s kind of where my heart is tonight.
I’m incredibly grateful I got to see my baby boy’s face today. But there’s also a sadness knowing it took four months to get here, and not knowing when I’ll get that same moment with Declan.
But tonight, we celebrate this win for Colton. One huge step forward.
We will have a more detailed update in the upcoming days. Please keep the prayers and positive thoughts for a boys coming, they need it!
No photos today. As we are waiting for Dad to see Colton‘s face in person on Saturday. We will update with photos later this weekend.




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