May 29th

Today was a calmer day for both boys, and we’re so thankful for that. 💙💙

Colton spent the entire day resting and did amazing. One of the sweetest moments was seeing him start music therapy today. It was absolutely beautiful watching him relax and respond to the music. Moments like that bring so much peace into such a hard season. (Shoutout to our nurse Cassidy for getting us on the schedule!!!)

Declan decided to keep everyone on their toes this morning and gave his nurses a bit of a hard time at first, especially with a trainee helping today. But after some time, he leveled out and settled in. His belly continues to look amazing, which we are so grateful for.

We did decide to stop his feeds for now after he had some spit up overnight. The plan is to wait until Monday, repeat another contrast test, and hopefully try feeds again then. Slow and steady. One step at a time.

And just like his brother, Declan also got to enjoy music therapy today. Watching both of our boys experience little moments of comfort and normalcy means everything to us right now.

Now prayers for a restful, simple, calm weekend, something this momma heart needs. And sleep….. sleep is needed… who goes to be at 8pm on a Friday night… this momma! 😂😂 once the boys laundry is done….