It’s been a roller coaster of a week, so why not let Friday be just as up and down. Thank you for all the prayers over the last few weeks, especially the last couple of days. The boys have really felt every single one of them, so keep them coming. God is good and prayers are working, We have hope and faith in our babies! Declan had another good day. His wound looks amazing, and we are very eager to see what the surgery team will say in the upcoming weeks. The longer we can go

Big update. We need a lot of prayers for Colton tonight and tomorrow. Our Colton is controlling everything right now. Early this morning he wasn’t feeling well and threw up and he threw up so much that he actually threw up his breathing tube. They had to re-intubate him. Later this morning he decided he was not having the MRI that was scheduled for today. He clamped down and stopped breathing, and they had to pull out his tube again and bag him to help him breathe. Then… he d

It’s always a ride with these boys. When things often get calm, there is always another bump, loop or turn. We’re keeping the doctors on their toes, digging back into the textbooks and collaborating with the team at Lurie’s. Let’s start with Declan, since he’s been more stable and semi status quo. Declan had his drain tube removed from his belly yesterday and he looks so good. He’s finally getting to try new positions and spend time on his sides, he especially loves facing h

Today’s update on our brave boys. Colton : The surgery team came in today to drain the bump on his wrist and take a culture. There was quite a bit of pus, but he did so good. It was fast and smooth and Mom even got to watch her tough little guy handle it like a champ. He’s had a busy day and is on oxygen to help him out. We’re really hoping he gets some good, deep rest tonight. Our little man needs it. He keeps fighting, even on the hard days. Declan : Declan is having a pre

The boys are doing well… not much to update. Which is a good but scary feeling. Hope we can have many more days like this. 🙏🙏 Declan gets a little break, no platelets today! He will most likely need them again tomorrow, but we are so thankful he gets a rest day. We think his wound is getting smaller… or maybe he’s just getting bigger (which we love to see). He still needs a few more weeks to keep growing and growing. We are still unsure about his liver since it hasn’t real

Kylie was home for most of the day for our baby shower. We felt so incredibly loved and supported. It was overwhelming in the best way. Thank you to everyone who showed up, sent messages, and continues to carry us through this season. Kylie made it back to the boys around 6pm and they clearly missed her. They were both so good… so good they both peed on her. NICU initiation complete….. Colton still has a little bump on his left wrist. We’re not sure where it came from, so we’

Late post. Kylie went home for the afternoon and night. Walking out while the monitors were ringing was not easy at all… but home was needed. The boys had the best nurses, people who love them and people we trust, and they’ll have wonderful ones again today. Gives us peace. Both boys had calm days. Declan got more blood and a new IV. He is absolutely showing his personality. He is feisty. If his diaper is wet or he wants to be moved, he will let us know. That boy can turn his

THE BOYS ARE ONE MONTH OLD TODAY. 💙💙 We made it to one month. The days are so long, but somehow the weeks are short. It’s hard to believe everything that has happened in just 30 days. We are exhausted, emotional, and overwhelmingly grateful. Grateful we got here. Grateful for every single hour with our boys. Grateful for the prayers that have carried us through this first month. Colton had the most attention today. He got a new PICC line, and thankfully one of his favorite

Declan is having a good day. He was pretty active this morning and really showing off his little personality. He had ultrasounds done on his head and his legs, and he did so well through all of it. We’re waiting on results, but sometimes no news is good news. The surgeons stopped by to check his belly and saw some active bowels….. such a positive sign. Keep the prayers coming. We truly feel them. Declan is fighting. Colton is still battling his infection, but he is fighting

Colton Colton is still fighting his infection. They removed his PICC line so his little body can rest and reset. He’s fighting like he always does, but you can tell he’s not quite himself. For his heart, we’re going to wait about a week and then recheck it to see where things stand. He is being so strong, but he really needs the prayers and positive vibes right now. Our sweet boy is pretty sick. Declan Declan is getting more blood since they keep needing to draw labs to check

Walked in this morning and the Dr. was already here; lots of information to take in. Declan – Surgery came by before I arrived. They really want him more stable with his blood counts and antibiotics before moving forward. He needed more platelets today. That’s good because they can give him what he needs, but it also shows his little body is still working hard fighting this infection. The timeline is still 2–3 weeks. They want to be sure he can truly heal and stay stable af

Not a great one. This time, Colton isn’t doing so well. When the boys were born, both had a small hole in their hearts, something common in preemies that usually closes on its own. It’s called a PDA (Patent Ductus Arteriosus). Colton’s has not. His is actually larger. Our entire team of doctors are working together to come up with a plan. We’ve been told this is common in preemies and often responds well to medication, which is reassuring. But it can also impact his gut and

Today was a fairly steady day for our boys. Not much has changed since yesterday, which we are thankful for. Colton seems extra exhausted with everything going on. His little body has been through a lot. Several of his medications have been adjusted, so he’s learning new ways to breathe with less support. We truly think he just needs some good, deep rest to adjust and grow stronger. Declan spent most of the day resting. The surgeon stopped in to take a look and didn’t have mu

Posted a day late. Yesterday (Feb 21st) was a good day, the kind where we exhale a little deeper. Colton had a few ups and downs in the morning. He’s still learning how to breathe on his own and remember not to hold his breath (these tiny preemie lessons feel so big sometimes). It can be scary in the moment, but he keeps working through it. He’s figuring it out in his own time, and we’re so proud of him for that. Every small step is still a step forward. We had a few sweet vi

We had a very rough start. Declan had a hard night that had everyone worried; nurses, doctors, even the surgeons. He was having severe episodes where he stopped breathing. His belly became very distended again, putting even more pressure on his tiny lungs. At one point, we were told there may be no coming back from this… and that another surgery is not an option right now. Pray for a miracle. There were a lot of prayers. A lot of hand-holding. And more mommy tears than anyone

Declan took a bad turn last night…. He is not doing well at all. 😭😭 he looks really bad and can’t breathe. We need all the prayers for him. 🙏🙏 waiting on surgeon to review him. It they already said they can’t go back in for 3-4 weeks. 😭😭

Today was a good day for the boys. We are almost scared to say that out loud… but we’re thankful. We had two amazing nurses today so mom felt comfortable enough to go home for a few hours. She got to see her first babies, the fur babies (puppies) and pack up a few more things for the room. It felt strange & hard to leave, but also good to breathe for a minute knowing they were in such good hands. Overall, things went smoothly today. Declan has still been a little up and down

Declan had a rough start to his day. His heart rate and oxygen kept dipping as he’s learning how to breathe on his own. Sometimes he just forgets, which the doctors say is typical for his preemie age. That’s both reassuring and terrifying for mom and dad at the same time. The good news is he is growing and his coloring continues to improve. He’s still very swollen, but the swelling is shifting, and as he continues to pee more, we’re hopeful it will keep going down. He is abso

Declan had a really good night. He’s already on lower settings for his lungs, which is such a huge step forward. Even better, he has started peeing a lot, which tells us his kidneys are doing their job. That alone feels like a win. He is still very puffy and swollen from all the medications, but we are slowly seeing improvement. From the outside, his belly is looking a little better. We are continuing to pray hard that his colon and intestines still have life and will grow an

A lot has happened in the last 24 hours. Colton is resting, and his lungs are continuing to clear and grow stronger. He’s officially off one of his machines and is on lower settings on the oscillator. (Shhhh… don’t tell him the less he knows, the better. He likes to fight it.) He’s still on steroids and a few other medications to support his growth and healing. We are so incredibly proud of him and the quiet strength he shows every day. Declan has had some of the biggest chan